Common Myths About Lymphedema

In Science & Education by Admin5 Comments

Lymphedema is common among cancer survivors. This is especially true of women who have undergone treatment for breast cancer. The removal of lymph nodes under the arm(s), and/or radiation therapy, may damage the lymphatic system. This can hinder its ability to do its job; draining high-protein fluid from affected tissues. This leads to an accumulation of these fluids, resulting in swelling and discomfort. Despite the relative frequency of this condition, though, there are many common myths about lymphedema that we want to help dispell.

Myth: There’s No Treatment

It is true that lymphedema is incurable. But that does not mean it is untreatable or uncontrollable. Rather, prescribed therapies—including wearing medical-grade compression wear—can reduce swelling, decrease pain, improve limb mobility, and contribute to an enhanced quality of life, by enabling the affected person to engage in normal daily activities. 

Medical-Grade Compression Wear

Talk to your doctor about Complete Decongestive Therapy. A certified specialist can perform manual drainage, while counseling you regarding appropriate compression wear, skin maintenance, and other approaches, such as prescribed exercises, which will improve your symptoms. Begin sooner rather than later, for best results.  

Myth: Lymphedema Didn’t Develop Post-Surgically, So I Dodged a Bullet. 

Sadly, this is not always true. Post-cancer, therapy-related lymphedema can develop at virtually any time. While lymphedema often develops relatively quickly following surgery or radiation therapy, it has been known to crop up months or even years later, with relatively little warning.

Even minor insults to the skin in affected areas may precipitate lymphedema. For this reason, women who have undergone mastectomy of the right breast, for instance, are cautioned to never allow themselves to be “stuck” in the right arm for a blood draw. They must also pay careful attention to the general health of the skin, avoiding sunburn, scratches, bites, or other possible irritations to the skin of the affected arm. It may even help to avoid hot tubs or saunas, in order to prevent the arm from overheating. 

Lymphedema Products Skincare

Advancing age and obesity also appear to be risk factors that increase a cancer patient’s risk of being afflicted with lymphedema. While there’s nothing that can be done about aging, it is possible to attain—or maintain—a healthy body weight. In this way, patients may be able to reduce their risk of eventually developing lymphedema following cancer treatment.

Myth: I Only Had Limited Lymph Node Removal, So I Won’t Develop Lymphedema

This also, sadly, is not entirely true. It is true that the removal of five or more lymph nodes is linked to a significantly greater risk of developing lymphedema. But even patients who have merely had one node removed have subsequently developed lymphedema. Every patient is different. There is simply no good way to be sure who will—and who will not—develop lymphedema in response to necessary cancer therapies.

Myth: I Can No Longer Lift Heavy Objects, or Even Engage in Exercise

On the contrary, post-cancer patients should be encouraged to resume physical activity, as long as it does not directly exacerbate symptoms. Being sedentary (not moving; being physically inactive) is actually linked to a greater risk of lymphedema.

Inactivity should definitely not become a cancer patient’s default response to surgery or radiation. Rather, seek to regain as much function in the affected limb as possible. Maintaining general physical fitness is another way a patient can reduce their risk of developing lymphedema. However, one should always consult one’s physician or lymphedema specialist before beginning any new exercise regimen.

Fact: Lymphedema Products Can Help You Manage Your Condition

With a wide selection of compression garments, skincare products, and more, Lymphedema Products is equipped to help you ease the burden of a lymphedema diagnosis. Our team will work with you to customize garments and provide guidance on the best options for our specific needs. Shop our inventory today!

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  1. My Husband had surgery after radiation and chemotherapy treatments for Epithelioid Sarcoma in his Right hip area. I would like to find find daywear like tights or leggings. His right leg swells 2-3 time larger than his left. Help!

  2. I have Lymphedema in my right arm. I am fortunate that it is not extremely swollen. My big question is trying to find a garment for my arm that doesn’t fold over around the back of my arm at my shoulder area. I’ve tried products that would make the garment stay in place but it still folds. When it does fold over my arm actually gets more swollen because it can act like a tourniquet which is obviously bad. I have tried many different sleeves and if I go to a larger sleeve then it’s too large for my wrist because I have small wrists. I’ve tried many different sleeves and I’m running out of options so lately I have not been wearing one and I just do MLD every other day. Do you have any suggestions for me?

  3. I am 355 lbs and was wondering if I lost 50 lbs could that have a significant role in eliminating what I estimate to be a lymph node reduction… Thanks, AL

  4. I have had inherited Lymphoedema for 40 years. I wear compression garments which keep the swelling down. I have a bright red rash on the lower 6 inches of both legs that I treat twice daily with emollient and occasionally a cortisone ointment (Eumovate) Should I use the cortisone every day or is there something better. I have recently moved into sheltered housing. The doctor is very kind but I don’t get the impression he knows a lot about Lymphoedema.

  5. What creams do help to keep the skin healthy. I’ve had it four months and the swelling’s rapidly increasing. No doctor’s seem to offer any advice at all. I do massages from Michael Mason’s book. South Australia. But will the swelling come down.
    Also how long do we have to wear the stocking daily as I can’t stand it and long to be free of it.

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